Colin was born with what is called Meckel Gruber Syndrome(MGS). MGS is a symdrome where the baby is born with enlarged kidneys and sometimes other abnormalities. Colin was born only with the enlarged kidneys and a small hole in the back of his head where brain was growing out. He died die to this. Doctors are not sure what causes it or how to help them. The mortality rate of MGS babys is 100%. There is a 75% chance we will have a baby and I pray that we do. We both carry a gene for MGS and the chances of us finding each other are very low. We love each other and this experience has brought us closer than ever. We cannot wait to go to Heaven to be able to see our little man again, but until than we will try to have more.
Colin was born with what is called Meckel Gruber Syndrome(MGS). MGS is a symdrome where the baby is born with enlarged kidneys and sometimes other abnormalities. Colin was born only with the enlarged kidneys and a small hole in the back of his head where brain was growing out. He died die to this. Doctors are not sure what causes it or how to help them. The mortality rate of MGS babys is 100%. There is a 75% chance we will have a baby and I pray that we do. We both carry a gene for MGS and the chances of us finding each other are very low. We love each other and this experience has brought us closer than ever. We cannot wait to go to Heaven to be able to see our little man again, but until than we will try to have more.